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NJ Spotlight News | New information hub for New Jerseyans with disabilities | Season 2024


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  Interview: Sarah Adelman, commissioner, Department of Human Services

Sarah Adelman, a pediatrician and mother, discusses the challenges and emotional toll of caring for her daughter with a rare genetic disorder, TBCK, on the PBS NewsHour. She shares her experiences navigating the healthcare system, the lack of available treatments, and the isolation felt by families dealing with rare diseases. Adelman emphasizes the importance of community support and research funding to improve the lives of those affected by rare conditions, highlighting the need for increased awareness and resources to help families like hers.

Read the Full PBS Article at:
[ https://www.pbs.org/video/intv-sarah-adelman-1722443672/ ]

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